Sunday, June 03, 2012
Meditation on Medicare: Making the Case for My Life
Today is a day of so many emotions. I don't know how in the world to describe every aspect of it. However, I know that there was something that I needed to say today. What I'm trying to do here is make the case for why society should make sure that Medicare stays available for for Americans.
It is incredibly hard to live in fear, real bone-chilling fear, that even with a cancer that has been manageable for nearly 10 years, it might not be enough. If the government withdrew Medicare, I could never afford to see the coordinating set of specialists who have--to every one's surprise--been able to keep me alive this long.
I'm not above begging for my life. I LOVE living. And maybe keeping me alive could help others, too. My case has been studied all around the USA. My cancer is so rare that there are only about 600 known cases of it in the world. If doctors and researchers can figure out how to deal with complex cases like mine, then it will be much easier for others in the future who find themselves facing a lupus or cancer diagnosis.
Screw it all! I'll be America's guinea pig. It sure as hell beats being dead. I gladly participate in the long shot strategies. Maybe when you need it, it won't be so risky, because they'll have figured out how to perfect it by trying it on people like me.
If society keeps me alive, I'll do my part to return the favor. Please y'all, please remember to fight for Medicare and Medicaid as this society tries to move toward a more humane system of care for everyone.